02:40AM, Friday 30 May 2014
A Maidenhead teenager with a muscular disease has realised his 'lifelong dream' by singing with a choir for the first time.
Jonty Miller, 15, took centre stage with Redroof's Theatre School choir on Friday, May 16, as part of a fundraising drive for bereavement charity Rosie's Rainbow Fund (RRF).
The choir, which involved about 40 pupils from the school in Bath Road, entertained shoppers with a repertoire of songs at Sainsbury's in Lake End Road, Taplow.
Armed with collection buckets the choir were raising funds as part of RRF's 'Wear Rainbow Day', where organisations, shops and schools across the area donned multicoloured clothing in exchange for a £1 donation.
Jonty, who attends Manor Green School in Elizabeth Hawkes Way and has weekly singing lessons, always wanted to sing with a choir but never had the opportunity.
His mum Sarah contacted Redroofs to ask if Jonty could get involved and was invited to join in with Chitty Chitty Bang Bang tune Hushabye Mountain, as part of the special performance.
The Abba fan and lover of the musicals didn't attend any rehearsals but learnt the lyrics from YouTube.
Sarah, who lives in The Chase, said: "He can't read but when he hears a song two or three times he remembers lyrics."
"The choir were so sweet, they were delightful children and really welcomed him and made him feel settled."
"At one part they had to sing quite loudly and Jonty lifted both arms as though to give them a boost."
Jonty, who has muscular dystrophy which causes muscle weakness and wasting in all the muscles of the body, described the experience as 'fantastic.'
RRF was set up by Redroofs founder Carolyn Mayling in memory of her daughter Rosie who died aged 11 of a rare blood disease.
It offers bereavement counselling as well as music therapy to sick children and their families and is currently facing closure due to financial pressures.
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